Macular Society


Macular degeneration results in the loss of central vision and is the largest cause of sight loss in the UK, where it affects over 500,000 people.  People with the condition can feel distress in a form similar to a bereavement. There are several forms of the condition, the most common being age-related macular degeneration (AMD) which normally affects people over the age of 60. There are inherited conditions of macular disease, commonly referred to as macular dysthrophies, that affect people at much younger ages...

The Macular Society is the only UK charity dedicated to helping people with macular and aims to help people achieve a better quality life.

The Society was founded in 1987 and is the largest patient group for visually impaired people in the UK with 16000 members.  The Society is a national charity with its head office in Andover, Hampshire, and a local network of almost 270 local support groups across the UK.

Providing Information Help and Support

  • Helpline  - A busy helpline open 9.00 am - 5.00 pm to anyone needing advice or support. 0300 3030 111.

  • Counselling Service – Free and confidential counselling service that offers emotional support and guidance to people with a macular condition or to a carer of someone with a macular condition.

  • Information – A wide range of free leaflets and booklets which can be downloaded free from the website, or by calling the helpline.  Membership costs just £18.00 a year and members receive the quarterly magazine ‘Sideview’ keeping members up to date with the latest treatments, low vision aids and activities.  Members also receive the annual scientific review of research digest.

  • Top Doctor events – these are held twice or three times a year around the UK.

  • Local Groups throughout the UK - these local support groups meet regularly to provide mutual support, information and encouragement. They welcome local speakers to group meetings and are always keen to involve volunteers.

  • Eccentric Viewing Training - A network of trained volunteers who can offer eccentric viewing training free of charge.  This technique can help optimise the use of the remaining peripheral vision and lead to increased reading speeds and improvements in day to day living.

Research

The Macular Society sponsors research into the causes, treatments and health management of macular disease. Since 2001 the charity has invested over £1.6 million in research in the UK.

Lobbying

The Society represents people with central vision loss in order to improve access to medical treatments and low vision services. Please contact the helpline for information and support on:

Tel - 0300 3030 111

Macular Disease Society

For further information and support on macular disease, contact:

Macular Society

PO Box 1870

Andover

 SP10 9AD
Tel: 0300 3030 111

info@macularsociety.org

www.macularsociety.org

Registered Charity No. 1001198


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